Tommy

Someday soon I plan to have my nervous break down, but right now I don't have time.
Tommy had a seizure on Sunday and has had a CT scan and an MRI and is OK. He is just not quite himself. Very tired, falling asleep on the couch just not normal for him.
He is just a wonderful kid. He is my buddy, my rock. We are so proud of him.
He plays with the younger kids in the neighborhood and I know he doesn't realize it, but that speaks to his character. He is great with younger children always coaching. Someday he will be a great father.

When Hannah heard about his seizure, she was upset and said she didn't want him to die. He was too much fun to annoy.

Of all the things we have been through with our children, that call from his Aunt telling me he was having a seizure was probably one of the scariest moments. Tommy is so healthy and strong, I just couldn't grasp the words. A total shock. Not Tommy, I would not be shocked to hear this about Hannah, the one with CF diabetes, but not my bud, my running partner.

I'm sure he will be fine and if not, God will get us through whatever happens.

But really God, it is not funny anymore. :)

Walks are over until next year

I'm tired. Mason's walk last Saturday raised over $13,000 our team was $1500 of that.

Cincinnati's walk was yesterday but I don't know the totals we had to leave to go to Hannah's softball game. Tommy won his game yesterday and Hannah lost her first game.

Dayton's walk was today and we had to leave before I heard the total. Hannah had a game and they won! Hannah had a double. She is great. You can really tell she has been playing awhile.
I am having a blast coaching these girls. Their faces are so sweet when they look up at me to get their fielding positions.

I said I was glad the walks are over and softball only last a few weeks. Tom reminded me that I will be depressed when it is all over. Post walk depression. I get it every year.

I am training for a 10K on August 1. Training every Wednesday until that Saturday. I have a great friend training with me. So far, we are having a blast.

We did it!

Tommy, my friend Jim and I survived the Flying Pig relay. What an awesome experience. I am not ususally the type to brag about myself but I am so proud that I was able to walk and actually run part of my 5 mile relay piece. And words cannot express how proud I am of my son. Tommy grew quite a bit as a person through this experience. After the race Hannah gave Tommy a big hug. My kids are great.

God Leads Us

I have a calendar on my desk and today's inspiration is:

God leads us. God will do the right thing at the right time. And what a difference that makes.

I needed that today. There is a lot of stuff going on in our family's life right now that I won't address in this blog because it is too personal to speak of at this time. Our family is rock solid so don't read anything into that. It has to do with extended family in another part of the country that is in need of all our prayers. I thought this quote very appropriate for the situation.

When God works on problems in your life and you let go and let Him do it, it is amazing what happens.

I haven't mentioned it before but my big brother turned his life over to our Lord and Saviour quite some time ago and I just learned by nephew Brad just did the same. This is a big deal for protestants. My brother and I lost our mother 21 years ago to a heart attack, I'm sure she is in heaven with a huge smile on her face and very proud of all of us. Our father and step-mother are quite proud of all of us too.

A very dear friend of mine recently sent me this bible verse:
Romans 8:28
And we know that in all things God works for the good of those who love him, who have been called according to his purpose.

The Cough is Back

The cough of a child with CF is like no other cough you will ever hear. It has its own unique sound and it is back. I hear her coughing all night. Finally gave in and put her on antibiotics. She was in the hospital this time last year. April is a tough month on our CF kids.

Prayers are needed for her.

Hannah's April Visit

Pretty uneventful visit. She is growing her usual h-flu and staph but for now we will just watch and try to avoid another round of antibiotics.

Her weight is good and her PFT's were great. We are trying to get her into some clinical trials but because of her liver disease she may not qualify for too many if any.

Heart Mini-Marathon

Tommy and I did the Heart 5K walk yesterday. We ran a little. Tommy could have run the entire thing probably. I am so proud of him he is such a caring young man. He hit Hannah in the eye with a softball (accidentally) and he spent quite a bit of time in her room consoling her. I have two great kids.

I'm proud of myself for my first 5K, not that it is very long but a year ago I could barely walk a mile. When we were finished, I felt like I could have easily done another couple of miles. I might be ready to do the Flying Pig in 5 weeks after all. That is about a 10K.

Hannah goes to the CF clinic Wednesday. She is coughing so I hope she is not growing anything in her culture at least nothing more than her usual h-flu and staph. It is interesting when staph doesn't scare you anymore. The reality of having a child with CF.