Tuesday, April 2, 2013

Irons and Wrinkles

On the way home from Easter services, Hannah asks from the backseat "If an iron takes wrinkles out, will it work on the wrinkles on your face?" or something close to that.  Anyway, I said I wish. She is so funny.  She says stuff like that all the time.  She gives me so much joy.  I can't imagine life without her.  She is going to be heart broken when her Tommy leaves for college in the fall.

Our entire family, uncle Marvin included dedicate ourselves to keeping that child healthy.  CF stinks and we see how it is affects her more and more everyday.  I know she is amazingly healthy for CF patients but I've seen little changes like last night after softball she said she started coughing and couldn't stop almost threw up and she can't catch her breathe when that happens.  Shortness of breath is the most noticeable change along with fatigue.  She was so tired after practice.  She often comes home after school and sleeps till dinner.

I hate this stupid disease.